Project Baby Manatee Archives

Media Coverage
October 23, 2023

Quick genetic test offers hope for sick, undiagnosed kids. But few insurers offer to pay.

CBS News / KFF Health News

CBS NEWS: Just 48 hours after her birth in a Seattle-area hospital in 2021, Layla Babayev was undergoing surgery for a bowel obstruction.

Media Coverage
September 6, 2023

Program leads way in diagnosing rare diseases

Key Largo Local10 News

Key Largo's Local10 News covers the impact of Project Baby Manatee.

Media Coverage
February 28, 2023

It takes an average of 8 years for a rare disease patient to get diagnosed. Why is it so hard to get life-altering genetic testing in the U.S.?

Fortune

Fortune: No one wants to find themselves sick or in need of a medical diagnosis. But there are those out there who already are—and are desperately seeking answers.

Media Coverage
December 2, 2021

New Form of Genetic Testing for Infants Earns Medicaid Coverage in Michigan

Precision Medicine Institute E-briefings

In its daily e-briefing for December 2, 2021, the Precision Medicine Institute reviewed the availability of Medicaid coverage for rWGS in Michigan, and the various state projects spearheaded by RCIGM that helped set the stage for Medicaid coverage.

Media Coverage
September 13, 2021

Nicklaus Children’s Hospital ‘Project Baby Manatee’: Advanced Genomics Cuts Diagnostic Delays & Costs

Florida Trend

News Center Archives

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Tag: Project Baby Manatee

Quick genetic test offers hope for sick, undiagnosed kids. But few insurers offer to pay.

Program leads way in diagnosing rare diseases

It takes an average of 8 years for a rare disease patient to get diagnosed. Why is it so hard to get life-altering genetic testing in the U.S.?

New Form of Genetic Testing for Infants Earns Medicaid Coverage in Michigan

Nicklaus Children’s Hospital ‘Project Baby Manatee’: Advanced Genomics Cuts Diagnostic Delays & Costs

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