More than 100 critically ill infants in five California children’s hospitals have received whole genome sequencing through Project Baby Bear.
The pilot program is serving babies in intensive care who are covered by Medi-Cal. By rapidly pinpointing the cause of rare disease, in many cases, doctors are able to precisely tailor care to improve lives and save healthcare costs. Project Baby Bear is offering hope to infants and families.
• Physician and Parent Perspectives
• Project Baby Bear by the Numbers
• Project Baby Bear Overview
• Launching Project Baby Bear
“Our partnership with the Project Baby Bear Initiative significantly shortens the path to a diagnosis and enables physicians to better treat their patients. It also lightens the burden of uncertainty for parents whose child is suffering from a rare disease.” –Mario Rojas, MD, NICU Medical Director, Valley Children’s Hospital.
In June 2019, the state of California set aside $2 million in funding for a pilot program to provide rapid whole genome sequencing to more than 100 acutely ill newborns at five hospitals statewide.
Led by Rady Children’s Hospital-San Diego, Project Baby Bear helps infants in intensive care who are covered by Medi-Cal. For many of the babies sequenced, rWGS is pinpointing the cause of rare disease allowing doctors to customize treatment.